NICHD also supports DS-Connect®: The Down syndrome registry, which is an online health registry to collect basic demographic and health information about people with Down syndrome. The second year of our five-year strategic plan was a success, with a number of major strategic priorities achieved. Thank you to all who invested in empowering individuals with Down syndrome over the past year! Eventbrite - Down Syndrome Education International presents 2019 Down Syndrome Research Forum - Monday, 16 September 2019 | Tuesday, 17 September 2019 at UCL, London, England. Find event and ticket information. Past research has shed light on the complex biology that results in three copies of chromosome 21 (trisomy 21) present in individuals with Down syndrome compared to the usual matched pair. In 2007, on average, persons with Down syndrome lived to be about 47 years old. The project was launched in 2018 with $22.2 million dedicated for research by NIH. INCLUDE is a trans-NIH effort that will fund research investigating critical health and quality-of-life needs for individuals with Down syndrome, while simultaneously investigating the risk and resilience factors for co-occurring conditions shared with individuals who do not have Down syndrome. We are proud to present DSRF's Annual Impact Report for 2019. This is a pressing issue with the roll out This is a pressing issue with the roll out of NIPT in the NHS from next year. The annual Down Syndrome Research Forum was recently held at University College London, attracting a record number of attendees, including researchers, practitioners and family members. DSRF in the Time of COVID/2019 Annual Impact Report. In 1960, on average, persons with Down syndrome lived to be about 10 years old. Further research could lead to treatments for neurodegenerative and metabolic diseases, Down syndrome, and maybe even aging-related diseases. Increased funding toward basic research on chromosome 21 will improve understanding of the biology of Down syndrome and support development of new treatments for health conditions experienced by … We … 27 Nov 2019 Down Syndrome Research Forum 2019. [Read summary external icon] Many factors can affect how long a person with Down syndrome lives. with Down syndrome are provided will be discussed. Only one Down syndrome research center, at the University of Colorado, is comparable to the new MIT center, he said. We would like to thank everyone who made this year's Forum so successful, especially Dr Jo Van Herwegen who hosted it at University College London.